A post I wrote nearly three years ago has recently gone viral, bringing tens of thousands of readers and a huge number of comments.  It’s a letter I wrote to my patients who do something that all but guarantees a bad relationship with many (if not most) physicians: they don’t get better. There are basically two responses I get to this post: either readers are grateful to have a doctor admit to our flawed humanity, or they are furious that I would suggest that patients, the ones with the disease, should see physicians as needy and flawed humans and therefore watch how they act around them.  If you haven’t done so, read the comments to this post and hear the deep frustration and anger brought out by a letter that sympathizes with their pain and (apologetically) tries to help.

Amidst the dichotomy of reactions, both of which I understand, is the obvious question: why has a relationship that exists for the purpose of healing and helping become one of frustration and anger?  The corollary to this question is perhaps more important: what can be done to heal this broken relationship?  A reader of my last post (about viewing patients from a different perspective) asked me point blank:  ”Dr. Rob, for the 99.999% of us who do not have a primary care doctor who is thinking as progressively as you, what advice can you give so that we can get our doctors to be treating us in the manner in which you are treating your own patients?”

I must admit, I get a bit uncomfortable with this, as it sounds like I am putting myself above my colleagues morally. Ironically, it is my deep understanding of my own huge flaws, coupled with an upbringing that scorned conformity, that rips me away from the survival self-centeredness most docs eventually adopt.  Putting myself on any moral high ground only invites a very public (and deserved) fall back to the low ground I usually inhabit.  No, I’m also not putting myself down out of false-modesty; I’ve made peace with my flaws, embracing them for what they are: a lens with which I can understand my fellow human scum-bags.  Of course, as my best friend (and best man) used to remind me: “remember, I am doctor scum bag to you.”

Now, I don’t lay the whole problem at the feet of the fallen nature of mankind.  I believe that our system of “health care” doesn’t just fail to counter the flaws of our nature, it actively promotes bad relationships.  It does this by:

  1. Reducing patients to “problems.”  The payment system requires we use “problem codes” to classify patients and justify visits.  The problem-oriented approach is not just a byproduct of the payment system, though, it is at the very core of medical education.  Despite a 100% ultimate failure rate, we are still taught that death and disease are the opponents we need to outsmart or out-procedure.  Perhaps its analogous to the public infatuation with the tawdry and grotesque (the more gruesome the murder, the more news shows cover it), but we physicians love “interesting cases.”  But nobody ever wants to be an “interesting case.” Ask any of the people who commented on the blog post.  Boring is better.
  2. Rewarding sickness.  Having a full office pays the bills.  If everyone got healthy, the system would collapse.  This means that anything that would help patients get healthy stands against the financial wellbeing of doctors and hospitals. If doctors communicate poorly with my patient, they will be less likely to get well, and will hence be more likely to need their services.  I don’t think docs actually use that sickening logic, but it is the ugly truth about our system.  This is why tools that should make care better are not adopted: doctors are penalized when they improve care.
  3. Making doctors targets.  I am not talking about patients, I’m talking about payers targeting physicians (and hospitals) as the cause of the problem.  It would seem that the best strategy to fight unnecessary cost would be to simply stop paying for unproven, unnecessary, and/or harmful procedures.  Better yet, why not pay docs like me who are motivated to keep patients well and happy?  But payers instead target doctors through small financial rewards and huge sanctions.  ”Quality measures” are not out there to reward high quality, their purpose is to expose and shame the bad doctors and hospitals.  Am I exaggerating?  Perhaps; but I can say that one of the best parts of being out of the insurance-oriented system is to no longer feel the passive-aggressive eye of big brother waiting to catch me not following their rules.  All docs feel this, and it puts them in a position of defensiveness, which is not good for patients.
  4. Killing time.  One of the most remarkable differences in my new practice is the amount of time I can give each patient.  I can answer the phone and handle their problems.  I can sit and chat with them if they stop by to pay their bill.  In the old system I was always late, always pressured to move on to the next patient, and rarely had time to do the most important thing: communicate with my patients.  Good care takes relationship, and relationship takes time.  Nobody has time any more because the system seeks and destroys time, either by filling it with meaningless clerical tasks or by punishing those who take extra time with lower pay.

In our health care system we have a business where both ends of the transaction are miserably unhappy.  99% of doctors hate the health care system, and the 1% who like it are the ones to avoid.  Patient dissatisfaction is nearly as high, skewed downward by people who have grown so used to the terrible system we have that they now see “terrible” as “average.”  Is there any other business where both consumer and those providing the product are so unhappy?  The reason for this is that someone else is shaping the system: the payers.

I must admit, I am not sure how this can be fixed in any way other than a total disruption of the current system and replacement with one that is centered on people, not problems, on communication not documentation.  Until we have a system that doesn’t reward sickness, sickness will be the reward we reap.  I left the system because I didn’t think there was any way to continue practicing good care in it.  While my new practice is far from perfect (consider the source), at least I am rewarded for taking time with people.

To have any chance at building better relationships between doctors and patients, we need to face the painful reality that our system corrupts even those with the best intentions.  So, I guess that would make it a “scum-care” or “health-scum” system?  The sooner we face our ugly reality, the more the chance of bringing the focus back to where it should be: caring for patients.

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This material, written by me, is free to re-post and share under the Creative Commons agreement. In other words, use it all you want; just give me credit.

Mind Map

This, apparently, is a map of my mind.  It’s a little shocking to find out that my mind looks like a sea creature, a bug, or perhaps a vegetable.  Actually, “Rob’s mind” and “vegetable” are often used in the same sentence.

Someone suggested to me that I may benefit from mind mapping.  I don’t know how to describe it, but I think spatially; I see things abstractly as if I am pulling up from the ground and getting an aerial view of things.  I write that way, I solve problems that way, I even play music that way.  Maybe it’s tapping on the right side of the brain that is about nuances or about how things relate to other things in proximity or direction.  Like I said: it’s hard to describe.

Anyhow, I was thinking about task-management with my patients, wondering what’s the best way to think about it and what is the best design for a system helping with this.  Task management is perhaps the most important thing in health care that’s never talked about.  Maybe that’s because it makes doctors feel less special, reducing our “magical” knowledge and “miracle” cures to algorithms and checklists.  Personally, I take great comfort in systems because they assure me I am not going to forget important things (like setting a reminder to take the trash out on Sunday and Wednesday nights).

The problem is that there are many, many tasks to consider when thinking about patient care.  For example, when test is ordered it need to be:

  1. Sent to the lab
  2. Sent back to us
  3. Reviewed, with the information used appropriately
  4. Filed into the patient chart
  5. Decided if/when the test needs to be repeated
  6. Decided if more testing or treatment is needed
  7. Sent to the patient with explanation of my interpretation and plan.
  8. Document that I communicated this
  9. Schedule any follow-up

You can see how this would quickly lead to overload, with a simple lab test resulting in 9 steps.  It is a bureaucrat’s dream, but a busy doctor’s nightmare.

Another problem is the complexity of the care of a patient.  There are lots of different aspects to patient care that can’t be ignored.  This brought me back to the idea of story telling, and how it relates to patient care.

  • What is the back story?  Who is this person and what are the various things in the past that have made them who they are?
  • What is the current scene?  What’s going on with the person right now?  What are they feeling, what medications are they taking, and what is their emotional state?
  • What is lurking in the future?  What are their risk factors?  What will need to be done and when?

Furthermore, in making a list that will work, we need to know:

  • The timing of the task.  Is it immediate or is the time flexible?
  • The importance of the task.  How critical is it to the patient’s health?
  • What is gained by doing the task?
  • What is lost by not doing it?
  • Who is responsible for the task.  Is this something I must do, does it go to my nurse, or is it something for the patient to do?
  • Who is responsible for checking to see it’s been done?

Heavy stuff.  How do I wrap my brain around building a task management system without making my brain turn to mush?  It was getting a little depressing.  I was tempted to shut down my brain and play Bejeweled for a few hours, but then I remembered the suggestion of mind mapping.  Why not?  Let’s step back and get a bird’s-eye view of the patient and what things we need to consider.  It couldn’t hurt.

What I got was a big spider-looking thing that could probably fill the pages of a book in explanation, but it’s the big picture that will hopefully help me decide on how to handle my patients.  Here’s what I included:

1.  Their Situation – What is going on right now?  What things are happening of significance?  Are they going through a divorce?  How old are they? Are they in a job they hate?   Do they have insurance?

2.  Their Lifestyle – While a situation happens to the person, lifestyle is a choice (by my definition, at least).  How does a person want to live?  What choices do they make?  Do they smoke?  Do they buy expensive cars?  Do they spend their days playing the lute and drinking mulled wine?  Obviously, these choices have a huge impact on a person and our approach to their health.

3.  Their state of well-being – This is their perception of their lifestyle and their situation.  It depends on a lot of things, but is predominately a function of perception.  It’s how they measure up to the “should” of life.  People with terrible disease can have a good state of being, while healthy people can be living in fear.

4.  Level of Understanding – How well do they understand their situation in regard to medical issues and others as well?  How open are they to learning new things?  Do they actually understand things, or have they convinced themselves that they do?  I value education and communication very highly, and yet there are some people who are not open to teaching at all (dogmatists) while others will devour eduction when given a chance to get it.

5.  Risk – This takes the overall situation of the patient and looks into the future.  Much of medicine is about anticipating risk and reducing it.  High blood pressure isn’t a problem in itself, it’s the higher risk of heart disease, stroke, and kidney damage that we are actually addressing.  In considering risk, the question always should turn to the severity of the risk (how bad of a problem), the immediacy of the risk (how soon it could happen), and the risk/benefits of intervention.

6.  New Problems – these usually drive the most items in a care plan, as assessing each of the above come into play with a new problem.  The key is to understanding overall impact of the problem on both length and quality of life, as well as the benefit of investigation and treatment.  First off, we need to understand the nature of the problem.  Is high blood pressure a problem needing treatment, or is it simply that they are totally stressed out about the weight we just checked? Please note that, as opposed to our beloved health care system’s view, the patient is the focus, not the problem.  Everything has a context on which it exists, and problems happen in relation to a patient.  Do always treat diabetes in a patient?  What about in my Mickey, who turns 100 today?  How big of a problem is a sugar of 200?

7.  Intervention (labeled as “treatment”)  -  We don’t think of problems for the mental exercise, we do so to intervene where appropriate or to understand future risk.  Interventions are often the things next to the check boxes on the task list.  Sometimes we choose to observe.   Intervention always comes with a cost, but non-intervention may cost more.  All intervention must be weighed, considering all the factors listed above.

8.  Chronic Problems – This is the “management” portion of medicine that plays well to a task list, and the one that folks measuring the “quality” of care don’t get beyond.  All medical care is not boiled down to meeting metrics, but the metrics are not unimportant.  The key is, like with the rest of this exercise, to consider the situation, risk, understanding, well-being, lifestyle, priorities, and other problems the patient has.  This doesn’t play well with the bean-counters of medicine, but it’s the reality that docs and patients face.

So, does this help?  It sure looks fancy, and sounds all TED talk-ish.  It scares me that I may be advocating something “holistic.”  I may just get a call from Oprah because of it.  Scary.

The benefit to me is that it pulls me away from the seductive simplicity of cookbook medicine.  In the end, medical care is a human interaction that is designed to result in health gain of the patient.  This is far more complex than a set of checkboxes or a bunch of criteria to assign meaning; in it’s best form medicine is very much right-brained.

And that, my friends, proves that I my just be in my right mind.

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This material, written by me, is free to re-post and share under the Creative Commons agreement. In other words, use it all you want; just give me credit.

Working

May 22, 2013 My New Practice

It feels dangerous to write this, but…my practice seems to be working. I am now running and hiding from lightning bolts, meteors, or stray arrows shot in the air by a Scottish soldier.  I am also expecting a raid on my office by the IRS, CDC, and BBC tomorrow morning.  I don’t know why I [...]

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DIY

May 12, 2013 EMR

There was a hole in the wall of our bathroom that was a painful reminder of a bad encounter with a plumber.  Yes, that hole has been there about a year, and it has been on my to-d0 list for the duration, daring me to show if I inherited any of the fix-it genes I [...]

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More Trouble

May 5, 2013 American Medicine

I remember going to see the movie “Oliver” in the theater when I was a kid.  Since this was my first movie in a theater, my mom made me a treat: a bag full of raisins and chocolate chips (Raisinets for Dutch people) and sent me there with my sister.  It was a fine film, [...]

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Telling a Good Story

April 28, 2013 Health Care - How it's Broken

It’s been a long time since I wrote a post.  My life, you see, is incredibly dull and boring.  There has been so little to write about that I’ve been at a loss. No, actually that’s a load of crap.  It’s become a fantasy of mine to have such boredom.  In reality, my life is [...]

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Collaborators

April 6, 2013 Collaborative Records

I’ve been going about this all wrong. It’s not my dumping of the payment system so I can focus on care over codes, my use of technology to connect better with patients, or my vision of the “collaborative record” that is wrong.  It’s the fact that I am doing this without my most important resource: [...]

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Waiting for Theoden

April 2, 2013 My New Practice

It’s official.  The road sign clearly welcomed me here.  I guess all business start-ups have to go through this town. What?  No bravado?  No chest pounding about how my ideas will change health care while making patients smell as springtime fresh?  Nope.  None of that.  It’s hard to get excited about ideas when only money [...]

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Say it Ain’t So, HIPAA!

March 25, 2013 Health Care - How it's Broken

Dear HIPAA: I’m sure you get a lot of hate mail, especially from folks in my profession, so when you got this letter from me you probably assumed it was more of the same.  Let me reassure you: I am not one of those docs.  I do think patient privacy is important, and actually found [...]

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Getting Engaged

March 11, 2013 EMR

“Patient engagement.” What is “Patient Engagement?”  It sounds like a season of “The Bachelor” where a doctor dates hot patients.  It wouldn’t surprise me if it was. After all, patient engagement is hot; it’s the new buzz phrase for health wonks.  There was a even an entire day at the recent HIMSS conference dedicated to [...]

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